Nastya Boichuk, DOB September 10, 2008, Kasabach-Merritt syndrome
By admin. Filed in They Need Help |
Nastya was born on September 10, 2008 in Kolomiya, Ivano-Frankovsk region. When we brought her home from the maternity clinic, we noticed numerous blue spots around her right nipple. Touching those spots induced pain. The doctors at the children’s hospital in Kolomiya told us not to worry and said the spots would disappear within a year. However, Nastya was restless all the time because of those spots, which gradually turned into a huge pigmented area. I asked the doctors to refer Nastya to Kiev, where we have been staying since April. Nastya completed the hormonal therapy. She had numerous blood plasma transfusions. Although the doctors succeeded in preventing the growth of the tumor, Nastya’s condition didn’t improve. Besides, the computer tomography has shown that the tumor has its roots in the muscular tissue. It’s looks like it’s a dead-end: the hormonal therapy is ineffective and the surgery may result in unforeseen complications due to a very large size of the hemangioma.
You can reach Nastya’s mother Olga at +38 098 250 2914